About Me...

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In a nut shell : I'm a wife, a full time working mom, a teacher, a Star Wars geek, comic book nerd, Disney enthusiast, hockey Mom, a decade long breast cancer survivor, and oh let's not forget such a happy, sassy, southern mess!

Sunday, August 31, 2008

Update

Hey everyone.

First I am sorry that I have not gotten this out sooner. Second because I am just not all there and coordinated, please forgive any and all typos and misspellings that may follow?


Well,On Thursday the 21st I had surgery and had those lumps removed from my head. It took more anesthesia than they thought so the following day I was sick as usual after I have those kind of things done. I think this makes #9 in 3 years. At least it is creating a bigger gap, lol. That makes like only 3 a year average now8-) . I can tell you having to hear them cutting is bad enough but having to feel it it is even worse! So I am still kinda recovering from that. I have two areas, about 2 inches long each with stitches right now. I will get them out on Friday. They are not so bad now, but I still can't lay my head down yet without wincing. I did find out good news but then I got hit with more news as usual and I have just not been able to pull myself together yet. They were tumors but thank the Lord they are begin. That is incredible news and enough to cause me to jump up and down! I was told that they will come back and every time they do they will need to be removed and biopsied. The larger one was deep and sitting on a nerve so that was a problem. One reason I was having so many headaches and dizziness. They also are more rare on the skull and supposed to run in the family. Go figure, since when did I do anything normal? LOL. Nothing I have runs in the family, lol. Oh well I can at least say that I am unique right? :-D The other thing, as a lot of you know is that I have been struggling for months with my calcium ( too high), iron, vitamin d ( both too low) and liver levels (again too high). They just keep causing problems and more tests then no one works together and I am left with more questions that before. Part of the reason whyI was waitingtill this week to type s omething up. I just feel at times that I have no control over the beast and it drives me crazy.

So Friday afternoon I was feeling pretty good. Flying high so to speak. Then I came home from having lunch with Micah and there is a message from the Rheumatologists office. I love this doctor. He is on top of things and very honest. His office may a bit slow but he is so worth it! So I was taken back by surprise when I heard his office on the machine asking me to call back as soon as I could regarding my test results (taken just the day before). This doctor is the one of about 2 out of the 9 of them that seems to keep both eyes on me and not just one. He had noted the day before that my goiter had grown larger and so he ran a thyroid panel ASAP without telling me. He had the results and he said he was very concerned because my numbers we severely out of whack. Funny thing is my Endo had just said I was fine. ( But your goiter doesn't grow unless something is up).Then again things can change quickly so I can't really fuss about the Endo. She is good and does care. These are my results:

TSH was high at 19.74 ( norm is 0.3 - 3.0)
T4 was low at .7 ( norm is 4.4-12.5)
T3 was 2.9 ( norm is 80-220)

So he sent things over to the Endo and wanted something done immediately. Guess what? I heard nothing, but I was sent for more blood work via the lab. They checked the parathyroid, my liver, my iron, my vitamin d and my calcium yet again. They need to coordinate honestly and just do the CT and scans that they keep holding back on. Something isn't right and they need to get it worked out so I can have my energy back. The liver thing just drives me nuts as it is up and down all the time and yet as soon as they get a good number they decide nothing needs to be done. But there has to be a reason for the roller coaster. Liver numbers just don't sky rocket and then fall again for no reason. I go back to all the papers I had to sign when I stared chemo... all these things were after effects. The heart murmur, the auto immune, the liver, ect.So I am waiting. Yet again. I would really like to get the thyroid thing resolved so I could have some energy and maybe take the weight I have put on the last month off. Yesterday I just could not stay awake no matter how hard I tried. I was falling a sleep on my feet. I just feel as if I am a pin cushion and lost in limbo somewhere. But I do have confidence in my Rheumatologist. He won't let this go unresolved for long.


I also have Johnny and the boys and that is a huge plus. They keep me going. I love them so much and could not possibly have made it through without them. The boys are growing so fast and understanding more and more. They have been dealing with all this for way to long now. I hope that in the end it will make them not only strong, but also compassionate men one day.As for growing up? Joshua stared Jr high last week. Poor baby missed his first day though due to a high fever. But he seems to like it a lot . Micah is in 4th grade and is still finding his way. But he is such a hoot! He would have you in tears from laughing so much if given the opportunity.

I can tell you that next month, at the end of the month I will celebrate 2 years of remission. Not something I take for granted but something I stand in awe of. I am living proof that in spite of the breast cancer beast, life goes on and is every bit as wonderful!

I love all of you!

C

Wednesday, August 6, 2008

Update





Hello Everyone!

I am so sorry that I have been out of touch for so long. I have not had the energy to get online for a bit. I did have my knee surgery in July and that went well. I was not expecting to be in a knee brace and on crutches for 4 weeks but that is what I was told to do. As well as most of you know me, you know that didn't fly so well with me, lol. So I have put the crutches a side, since they became a pain but I have tried to follow all the other orders as best as I can. I will see the Ortho doctor again next week.

As for everything else, well I am still a pin cushion and a lab rat for my doctors! The last set of numbers to come back showed that my liver functions and my calcium were way too high. So I am being sent for another liver function test as well as a hepatitis screening. If the Hepatitis test comes back normal ( and I assume it will) then I will be sent for a CT of my liver to see what is going on there. The biggest problem I seem to face is that this thing with my liver seems to keep popping up and I just seem to keep being passed from doctor to doctor. Finally, the endo has passed me to the oncologist and really both of them are good doctors and I trust them to do what is best. So the oncologist is on it now. I guess my numbers were just too high this time to try and reason with.

As for the calcium, my endo is on that one now too. It has come back high one time too many so I am doing a 24 hour urine collection (Uck! I know) and then depending on what that has to say I will have further tests. My vitamin D is still too low as is my iron, but we are working on that. Most of this is just residual from chemo I believe. I remember reading through all those pamphlets as I was staring on those nasty critters and some of of my problems seem to match up honestly. Just more hurdles, no biggie!

As for my R.A.? Well I doing ok. My hands and fingers hurt all the time. Just typing is a project for me. It has gotten to the place where opening up doors or even mail is hard. I don't have the strength sometimes to push my hands to do my bidding. My hip is so much better though, but my hands seem to like to ride the roller coaster. So I have days, even weeks when I am great, at least I can open drawers, turn knobs and open mail, but then there are times like these when just touching a key pad is excruciating. I will pay for this later for sure. But I have to keep living life as normally as I can. I have to do it for my boys, for Johnny. I have no other choice, I am not one to lay around, ( though I have done that a little more lately than I like) and just moan.

And last but not least I will have my biopsy of the lump on the back of my skull in about a week. So I will let ya'll know as soon as I know anything. No worries.

Please know that I am thankful for all your love and support over the last 2 years. I am in awe of those that have stood by me through it all. Next month I will celebrate 2 years of remission. Definitely a step in the right direction. Once I make 3 years I will go wild, and 5 years there will be no holding me back, lol! Those are definitely key dates with TN breast cancer so be ready to party! 8-) Also I am going to try to get back to organizing the walk for this year so if anyone is interested in walking, coming out to support or donating please check out the link below.

Love to all!

Christina